Care Partner Resources
Created Just For You
First thing’s first, pause for a moment to take a deep breath. It might not feel like it now, but in time, you will find your footing. Down the road, maybe sooner than you think, you will feel proud of your growth, of how much you have learned and how deeply you can love.
You Don’t Have to Do This Alone
Looking back at the start of my journey as a care partner, I wish I would have taken a leap of faith sooner to reach out for support sooner. Now, I can truly say that educating myself and making time for myself were, and still are, essential to walking this path. As you browse this page, and my blog (launching in May,) I hope you’ll find resources helpful to your care partner journey too.
Make Time to Connect
Tune in to interviews with experts dedicated to educating and advocating for care partners and brain health
Mission-Driven Organizations and Experts
No one should navigate this journey alone because support isn’t optional, it’s essential. You can find community through organizations like AFTD or the Alzheimer’s Association, your neurologist’s office, local hospitals, memory care centers, adult day programs, places of worship, and social media groups. Word of mouth can also help. Let friends and family know you’re looking to connect with another dementia caregiver.
Upcoming Book:
The Unexpected Journey
The day my husband, Bruce, was diagnosed with frontotemporal dementia (FTD), I walked out of the doctor’s office with nothing but a pamphlet—and a crushing sense of fear, grief, and uncertainty. The life we had envisioned, full of shared dreams and future plans, had suddenly unraveled. With no guidance, I felt isolated and overwhelmed, wondering how I would care for my husband while raising our two young daughters.
In those early days, I longed for someone who had been through it to tell me, “This feels unbearable now, but you will get through it.” That’s why I wrote The Unexpected Journey, the book I wished I’d had. It’s a blend of personal experience and expert-backed insights, not just for those facing FTD, but for anyone navigating the demands of caregiving. I’ve learned that caregiving is not a solo journey, that taking care of yourself is not optional, and that while I couldn’t change Bruce’s diagnosis, I could change how I faced it.
I’ve chosen to step forward—to use my voice and platform to support other care partners, raise awareness, and advocate for better treatments for FTD and all neurodegenerative diseases. I’ve pushed myself beyond my comfort zone to turn pain into purpose, ensuring that no caregiver feels as alone as I once did.