• Emma’s Story
  • Resources For Care Partners
    • Resources For Care Partners
    • What Is FTD?
    • How To Advocate
    • Make Time to Connect
  • Book
    • The Unexpected Journey
    • Events
  • Make Time Wellness
  • Make Time Pod
  • Blog
  • Press
  • Follow
  • Follow
  • Follow
Emma Heming Willis
  • Emma’s Story
  • Resources For Care Partners
    • Resources For Care Partners
    • What Is FTD?
    • How To Advocate
    • Make Time to Connect
  • Book
    • The Unexpected Journey
    • Events
  • Make Time Wellness
  • Make Time Pod
  • Blog
  • Press
Follow Along On Instagram Follow Along On Instagram Follow Along On Instagram Follow Along On Instagram Follow Along On Instagram Follow Along On Instagram
Follow Along On Instagram Follow Along On Instagram Follow Along On Instagram Follow Along On Instagram Follow Along On Instagram Follow Along On Instagram
An intimate evening at my local bookstore, @zibbys An intimate evening at my local bookstore, @zibbysbookshop 💙📘
My friend @pattidavis10 led The Unexpected Journey book talk, and it was such a meaningful night.
I asked for a show of hands to see how many caregivers were in the room and was surprised to see only a few. What I loved about that was the curiosity and the willingness to listen, to learn, and to understand care and dementia. 
Caregiving will touch us all, whether we’ll give it or receive it. These conversations matter. Because when we share our stories, we help the unseen feel seen and that awareness can shift how others show up for caregivers. 💙

🎥 @quoc
We joined @moshlife this weekend for Brain Fest, a We joined @moshlife this weekend for Brain Fest, an incredible event that brought together experts, brands, and organizations all making a difference in the world of brain health. 🧠✨🌈
It was a fun day filled with movement, education, and community - all things that our great for our brain health. @helenchristoni and I hosted our @maketimewellness booth, where we talked with women about how to protect our most important asset. I even got to sign some books, which always brings me so much joy. 💙📘
A big thank you to @mariashriver and @patrickschwarzenegger for having us. So grateful we can get loud together and remind people that taking care of your brain can start today. 💪🧠
📸 @quoc
I’m honored to be speaking at the Caregiver Nati I’m honored to be speaking at the Caregiver Nation Summit on November 5th. 
I’ll be joining other advocates and leaders in the caregiving space to help amplify the voices of family caregivers and push for the recognition and support they deserve.
Whether you’re joining from D.C. or tuning in from home, this Summit is about connection, action, and hope because every caregiver’s voice deserves to be heard. 💙
Huge thanks to the @caregiver_nation - National Alliance for Caregiving who’s bringing us together for this important conversation.
In-person is sold out, but you can still register to join virtually and be part of the care movement: head to my link to bio to register or go to caregivernationsummit.org
History made in New York! 🗽 The FTD Registry B History made in New York! 🗽

The FTD Registry Bill (S598B) has officially been signed into law by @govkathyhochul making New York the first state in the nation to establish a research registry dedicated to frontotemporal dementia (FTD).
This law will finally give doctors and researchers the data they need to track FTD diagnoses, raise awareness, and improve care for families living with this disease.
A huge thank-you to Assemblymember @amypaulin1 for championing this bill, and especially to @michellehincheynysenate. Your leadership, persistence, and courage in honoring your dad through this work have given our community so much hope and continues to inspire me. 💙
And to everyone who tagged, reposted, and raised your voices, it worked. This is community in action and proof of what’s possible when we come together.
New York will be the model for every state to follow. This is just the beginning.

#endFTD @theaftd
What an incredible few days @unravelledplay: A Tru What an incredible few days @unravelledplay: A True Story of Transformation at @thewallisbh. 
After the performance, I had the privilege of joining a powerful panel discussion, “What’s Coming Next for FTD,” alongside Dr. Bill Seeley (UCSF Neurologist), Susan Dickinson (CEO of @theaftd), @lindejlee (FTD Advocate), and Brandy Matthews (@elilillyco Lilly Pharmaceuticals), moderated by Dr. Emily Silverman. Together, we explored the future of FTD through the lens of policy, science, lived experience, and advocacy, and how we can build greater public awareness. 
It was also so special to have friends and family in the audience who got to hear about the FTD Caregiver’s Roadmap, an idea I shared with Dr. Bruce Miller that has been brought to life by @ucsf and adapted by @cedarssinai. I’m deeply grateful to be part of this compassionate community working to change what a diagnosis looks like for the next family. 💙 #endFTD

To Care Partners, From

I’m excited to share that The Unexpected Journey, which is dedicated to my fellow care partners is now a New York Times bestseller. The book is published by Maria Shriver’s imprint, The Open Field at Penguin Random House. 

Available now!

Sign Up For My Newsletter
  • Book
  • Follow On Instagram
  • Sign Up For My Newsletter
  • Contact Us
  • Press
EHW Monogram

Find joy in today.
Choose hope for
tomorrow.

  • Follow
  • Follow
  • Follow
  • Blog
  • Resources For Care Partners
  • Make Time To Connect
  • Emma’s Story
  • Make Time Wellness
© 2025 Emma Heming Willis

Privacy Policy

Terms of Use

Cookie Policy

Accessibility

Website by November

Content on this site reflects Emma’s personal experience and is for informational purposes only. It is not a substitute for professional medical advice.

We use cookies to ensure that we give you the best experience on our website. If you continue to use this site we will assume that you are happy with it.OkPrivacy policy