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BIG NEWS for our FTD community 💙 SB 1047 has pa BIG NEWS for our FTD community 💙
SB 1047 has passed the California Senate and Legislature and is officially headed to Governor Newsom’s desk.
Please urge Governor Newsom to SIGN SB 1047 by emailing Leg.Unit@gov.ca.gov
You can also visit the link in my bio through @theaftd to take action. It only takes a minute, and every voice matters.
Please reshare this and let’s get FTD seen and counted. 💙

#SB1047 #FTD #endFTD #FrontotemporalDementia
Postcards from Idaho 💌 In the great wide open, Postcards from Idaho 💌 In the great wide open, celebrating family, friendships, and everlasting love.
As we get closer to finding out whether SB 1047 mo As we get closer to finding out whether SB 1047 moves through Appropriations, I keep thinking about how much work has gone into getting us to this point.
Whatever happens next, I feel really good about what we’ve done together. AFTD, our relentless FTD advocates, @senrogerniello and Senator @benallenca , @asm_irwin, and so many others have shown up with real passion for our community and for why FTD needs to be seen and counted.
We’ve walked the halls, knocked on doors, shared our stories at the State Capitol, and made sure people understand why data matters.
Of course, I want this bill to keep moving through the Assembly and onto the Governor’s desk. But I’m also taking a moment to feel proud of how far we’ve come and grateful to everyone who helped get us here.
It takes a village. Onward 💙

#SB1047 #endFTD
The actual purpose of this post was to talk about The actual purpose of this post was to talk about the importance of making time for a hobby or trying something new, and how beneficial that can be for our brain health. In my case, it was harvesting lavender from our garden for the first time, then bundling and drying it out. Getting stung in the process wasn’t supposed to be part of the equation. 🐝🪻
This week on the blog, I’m so happy to welcome A This week on the blog, I’m so happy to welcome Ai-jen Poo, Executive Director of Caring Across Generations. Ai-jen is someone I deeply respect, and when she talks about care in this country, I listen and learn.
Ai-jen believes the people closest to the challenges of care often have the best ideas for how to solve them. That’s the idea behind One Million Care Conversations, a national effort to hear directly from caregivers, families, older adults, disabled people, and care workers about what they need and what would actually make care better.
I was honored to help launch this initiative with @aijenp and @senatorandykim earlier this year. And now Ai-jen wants to hear from you. What do you need? What would make caregiving better? What do you wish someone had understood from day one? Your experience and your ideas can help shape what the future of care looks like in this country.
💙 Read Ai-jen’s piece “Have Ideas About Caregiving? We’re Listening.” and learn how to add your voice to One Million Care Conversations. Link in bio.

To Care Partners, From

I’m excited to share that The Unexpected Journey, which is dedicated to my fellow care partners is now a New York Times bestseller. The book is published by Maria Shriver’s imprint, The Open Field at Penguin Random House. 

Available now!

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