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I was in DC with Natasha during AFTD’s Capitol H I was in DC with Natasha during AFTD’s Capitol Hill briefing, where we were educating policymakers about frontotemporal degeneration (FTD) and the realities families face living with this disease.
As I sat and listened to Natasha share her experience as someone living with bvFTD, and the traumatic encounter she had with first responders during a health crisis, I realized this is yet another critical gap in our understanding and education around dementia.
Unfortunately, Natasha’s story is not the first I’ve heard. Over the years, I’ve listened to too many stories from families living with FTD and other forms of dementia, who have experienced frightening and traumatic encounters with law enforcement because there is still not enough awareness and training around these diseases.
What makes Natasha’s story so powerful is not only her courage in sharing something so deeply painful, but how she is using that experience to advocate for change. She is helping bring awareness and education to first responders so that people living with dementia are met with understanding, safety, and the appropriate care during moments of crisis.
💙 Please read and learn more on the blog at EmmaHemingWillis.com — link in bio.
The only thing better than a pre-birthday celebrat The only thing better than a pre-birthday celebration with friends? Watching the Knicks win while you’re doing it 💙🧡🥂

🎥 @qu.oc
Big momentum for FTD families in California. SB 10 Big momentum for FTD families in California. SB 1047, the bipartisan bill to add FTD to California’s Neurodegenerative Disease Registry, passed unanimously out of the Senate!
Thank you to @senrogerniello and @senbenallen for being bipartisan champions for the FTD community. 
People living with FTD and their families deserve to be seen, counted, and better understood.
Let’s give some good juju to this as the bill heads to the Assembly 💙
Read more about why this matters and how you can help. Links in my bio.
Calling on North Dakota and Utah (officially voted Calling on North Dakota and Utah (officially voted the kindest people by the Willis girls 💙) to help us get to all 50 states recognizing FTD Awareness Week; Sept. 28th-Oct. 4th. 

Please email ADVOCACY@THEAFTD.ORG to help make it happen. Every state matters.

#endFTD
Caregiving was never meant to be a solo mission. M Caregiving was never meant to be a solo mission.
Many caregivers simply don’t have the bandwidth to keep up with legislation, awareness, or research updates because they’re already carrying so much. One thing I’ve learned is that advocacy is another powerful way to support caregivers and families living with disease. 
This is where I encourage friends and family to step in. To use your voice, learn, and show up when you can. It truly matters and will make a huge impact 💙
I share simple ways to take action on my blog. Link in bio or head to emmahemingwillis.com

To Care Partners, From

I’m excited to share that The Unexpected Journey, which is dedicated to my fellow care partners is now a New York Times bestseller. The book is published by Maria Shriver’s imprint, The Open Field at Penguin Random House. 

Available now!

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