• Emma’s Story
  • Resources For Care Partners
    • Resources For Care Partners
    • What Is FTD?
    • How To Advocate
    • Make Time to Connect
  • Book
    • The Unexpected Journey
    • Events
  • Make Time Wellness
    • Make Time Wellness
    • Make Time Pod
  • Blog
  • Press
  • The Emma & Bruce Willis Fund
  • Follow
  • Follow
  • Follow
Emma Heming Willis
  • Emma’s Story
  • Resources For Care Partners
    • Resources For Care Partners
    • What Is FTD?
    • How To Advocate
    • Make Time to Connect
  • Book
    • The Unexpected Journey
    • Events
  • Make Time Wellness
    • Make Time Wellness
    • Make Time Pod
  • Blog
  • Press
  • The Emma & Bruce Willis Fund
Follow Along On Instagram Follow Along On Instagram Follow Along On Instagram Follow Along On Instagram Follow Along On Instagram Follow Along On Instagram
Follow Along On Instagram Follow Along On Instagram Follow Along On Instagram Follow Along On Instagram Follow Along On Instagram Follow Along On Instagram
Thank you for sharing your stories with me. They’re giving me permission to seek out new things that could bring me joy too, preferably without guilt. 😉
Your stories have also been a healthy reminder that making room for joy doesn’t mean we love or care any less, but in the simplest terms, it means we still get to live too 💙
Early in my caregiving journey, I felt no joy. I w Early in my caregiving journey, I felt no joy. I was overwhelmed by grief, shock, sadness, resentment, anxiety—just to name a few. And when I did experience a moment of joy, it was often followed by guilt and shame.
I’ve since learned that joy and grief can exist together. It can still be hard, but I now make a conscious choice to let joy in when it comes and to seek it out. 
I’d love to hear how you make room for joy in your life as a caregiver. Please consider sharing your story with me at stories@emmahemingwillis.com 💙

#caregiversupport
We’re one signature away, and your voice is need We’re one signature away, and your voice is needed! 
SB 1047 has passed the California Legislature. Now we need Governor Newsom to sign it into law so frontotemporal dementia diagnoses in California can finally be seen and counted.

Read my blog to learn why data matters and how I believe this legislation could open the door to greater recognition of other related dementias.
We are so much louder when we come together, so please add your voice to ours.
Link in bio to take action. 💙
We were three of the 45,000 people who came out to We were three of the 45,000 people who came out to support @oliviarodrigo and watch @daisychainfields raise $10 million for 10 incredible organizations. Then @melindafrenchgates matched it, bringing the total to $20 million!
I was especially happy to see @domesticworkers highlighted and supported in their mission to make care, and the people who provide it, seen and valued. What a powerful thing to be a part of and witness. 💜🌼
BIG NEWS for our FTD community 💙 SB 1047 has pa BIG NEWS for our FTD community 💙
SB 1047 has passed the California Senate and Legislature and is officially headed to Governor Newsom’s desk.
Please urge Governor Newsom to SIGN SB 1047 by emailing Leg.Unit@gov.ca.gov
You can also visit the link in my bio through @theaftd to take action. It only takes a minute, and every voice matters.
Please reshare this and let’s get FTD seen and counted. 💙

#SB1047 #FTD #endFTD #FrontotemporalDementia

To Care Partners, From

I’m excited to share that The Unexpected Journey, which is dedicated to my fellow care partners is now a New York Times bestseller. The book is published by Maria Shriver’s imprint, The Open Field at Penguin Random House. 

Available now!

Sign Up For My Newsletter
  • Book
  • Follow On Instagram
  • Sign Up For My Newsletter
  • Contact Us
  • Press
EHW Monogram

Find joy in today.
Choose hope for
tomorrow.

  • Follow
  • Follow
  • Follow
  • Blog
  • Resources For Care Partners
  • Make Time To Connect
  • Emma’s Story
  • Make Time Wellness
© 2026 Emma Heming Willis

Privacy Policy

Terms of Use

Cookie Policy

Accessibility

Website by November

Content on this site reflects Emma’s personal experience and is for informational purposes only. It is not a substitute for professional medical advice.

We use cookies to ensure that we give you the best experience on our website. If you continue to use this site we will assume that you are happy with it.OkPrivacy policy