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Meet the Village 💙
This week on the blog, I’m so grateful to share the words of Barri Leiner Grant. She’s a grief specialist, writer, and founder of @thememorycircle.
Barri’s piece is deeply personal. She writes about caring for her dad through memory loss and what it looked like for her family to show up with love, creativity, and a lot of learning along the way.
It’s tender, real and full of the kinds of things we don’t hear often enough: what to ask, what to expect, and how to stay present through it all.
I started this blog so we can learn and grow from experts and fellow care partners walking a similar path. Our experiences may look different, but we’re connected by a shared thread and I want you to know that others truly want to support us and help us feel seen.💙 Head to the link in my bio to read her post.
It started with one. Now we’re at thirty 🔥 Th It started with one. Now we’re at thirty 🔥
Thirty FTD awareness resolutions and proclamations have been passed across the U.S., bringing visibility, validation, and hope to families who are so often overlooked.
This progress is no accident. It’s the result of tireless work by advocates, @theaftd, and leaders like @michellehincheynysenate who believe in the power of awareness to drive change.
FTD is often invisible, misunderstood, and underfunded but that’s starting to change.
These resolutions might seem small from the outside, but they’re the beginning of something bigger: a future where FTD is recognized, researched, and better supported.
And to the FTD advocates who keep showing up, who write the emails, make the calls, share their stories, and fight through their own heartbreak to help others, you are the force behind this progress. Thank you 💙
Over the past few weeks, I’ve been wrapped in so Over the past few weeks, I’ve been wrapped in so much love for my birthday. From Bruce, our girl’s, my mom, my family, and dear friends. I feel their love and support holding me up in ways words can’t always capture.
Thank you to everyone who sent birthday wishes. I truly felt your continued kindness and I’m grateful. I had a beautiful day 💙
This is a big moment for the FTD community 💙 A This is a big moment for the FTD community 💙
A bill to create the first-ever FTD registry in the U.S. has passed through the New York Legislature and is now heading to Governor Hochul’s desk.
If signed into law, this registry would finally give us the data we need to better understand FTD, who it affects, where, and how we can support families with smarter care and stronger research.
Huge thank you to @michellehincheynysenate for championing this bill, and to Assemblywoman @amypaulin1 for your continued support. Your work is moving us forward, big time. 
We’re gaining momentum and it’s truly an exciting time. 💪🏽
There’s a quiet kind of strength in the kids who There’s a quiet kind of strength in the kids who are living with a parent’s dementia diagnosis. They carry so much, often without anyone truly understanding what it’s like.
That’s why I want to tell you about @lorenzos_house and their Global Youth Summit happening this week. It’s a space created just for them. For connection, for healing, for knowing they’re not alone.
If this sounds like your family or another you know, please share.
The link to register is in my bio. 💙

To Care Partners, From

I’m honored to announce my first book, The Unexpected Journey, which is dedicated to my fellow care partners. The book will be published by Maria Shriver’s imprint, The Open Field at Penguin Random House.

Out September 9th. Preorders available now.

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