Emma Heming Willis

Become an Advocate

Together, let’s use our voices to raise awareness for FTD, support caregivers, and push for meaningful change.

Inspire Action & Create Change

The path toward better support for caregivers and treatment for FTD begins with advocacy and your voice is critical to these efforts. As advocates, we work to increase awareness and education among policymakers, bringing attention to the immense financial, emotional, and physical toll this disease takes on individuals, families, and care partners.

Advocacy doesn’t just create change, it has been transformational in my own journey. Standing alongside the FTD and caregiving communities has renewed my sense of empowerment, hope, and the strength to press forward. Together, we can make a lasting impact for care partners and those we love.

Emma NY Speech

Emma NY Speech

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AFTD Fireside Chat

AFTD Fireside Chat

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Let’s Make Some Noise

Together, we can move the needle on policy and legislation that will expand funding for medical research, strengthen public programs, improve caregiving support services, and increase access to accurate FTD diagnoses. By advocating for both those living with FTD and their care partners, we can drive meaningful change that benefits entire families.

AFTD Resolution Toolkit

One meaningful way to raise awareness for FTD is by working with your local officials to pass a resolution recognizing World FTD Awareness Week, September 21–28, 2025. Efforts like this help bring visibility to the disease, educate decision-makers, and open the door to real change in our communities. Your voice has power—let’s use it.

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AFTD Proclamation Toolkit

A proclamation is a powerful way to shine a light on FTD in your local community. By asking your city or state leaders to officially recognize World FTD Awareness Week (September 21–28, 2025), you help raise public understanding and bring much-needed attention to care partners and families affected by this disease. Every voice counts—and yours can help start the conversation.

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AFTD Advocacy

Advocacy matters because it turns care into action. Advocates raise their voices to educate elected officials about the impact of FTD—pushing for better support, more research, and real change. You don’t need to be political to make a difference, just passionate and willing to speak up for those who can’t.

AFTD Website